CindyFrench-stranger than fiction stories

about facing life with hope and confidence, no matter the diagnosis

Wrong Diagnosis!!

Posted by Cindy H French on 11/22/2009


I had my brain angiogram yesterday. To the great surprise of my nuero doc, I do not have any fistulae, no arteriovenous malformations! I do have an inordinate number of blood vessels all over my scalp, but no tumor in the brain, no aneurysm. This is all great news!

The only bad news is that I still have a tremendous headache; I still have fluid in 3 pockets on my head; still have the nausea and dizziness–and NO ANSWERS!

I have to admit that at first, I cried. It is very frustrating to know that something is wrong with you, but hard to diagnose! I was very happy that it wasn’t as horrible a diagnosis as they thought, but all I was dealing with yesterday was an excruciating headache. After taking Vicodin, to no avail, they gave me Dilaulid as I am allergic to Morphine. Unfortunately, we very quickly found out that I am also severely allergic to the Dilaulid-it started with severe itching and then my asthma kicked in and very soon I was coughing and wheezing and not getting my breath. Thank goodness for one of the nurses who is also asthmatic-she got me the right meds pretty quickly, but I still had to stay overnight in the hospital. It was 3 in the morning before I was really able to settle down and sleep.

Needless to say, I scared my neuro doc to death! He is not used to dealing with asthma or any side effects from meds. I told him I am a walking “Murphey’s Law” when we first met. I think he believes it now!  The next step is a confab between him and all the nuero docs at USF. He will present my tests, scans, notes and his findings on Tuesday to them and hopefully someone will have an idea of what I have or what to do next!

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